Supporting Parents of Autistic Children: Key Things to Understand

January 14, 2021
AUsome Training supporting parents and carers - AUsome

Parenting an Autistic child, or a child who is awaiting diagnosis, can feel overwhelming. There is a huge amount of information out there, and unfortunately a lot of misinformation too. Cutting through the noise starts with a few key ideas worth understanding.

Communication is a two-way thing

When people think about autism and social skills, the instinct is often to focus on deficits, on the idea that Autistic people need to be taught and trained how to behave in social situations. That idea is outdated. These antiquated approaches only harm an Autistic person’s sense of self, and they overlook the fact that communication is a two-way exchange, not a one-way skill to be corrected.

Understanding personal space and boundaries

The world is often not set up for Autistic people, and that starts from day one. Understanding how and why that happens, and what its impact is over time, helps parents adjust how they interact with their Autistic child from infancy through to adulthood. One useful idea is the “extended self”: each of us builds our sense of who we are around overlapping personal spaces. Knowing where your boundaries lie, and feeling in control of the spaces within them, is a foundation for lifelong confidence and quality of life.

Looking after your own mental health as a parent

Ongoing uncertainty can put a real strain on a parent’s mental health. The adjustments involved in raising a child who is or may be neurodivergent bring plenty of uncertainty of their own, not least the uncertainty of knowing who to trust for reliable information. It’s worth remembering that “good enough” parenting is enough, and that minding your own mental health is part of supporting your child well.

All Autistic play serves a purpose

Repetitive play, whether it’s lining things up, counting, or spinning the wheels of a toy car, often has a purpose: developing counting skills, spotting patterns, or understanding mechanics. Suppressing Autistic play means suppressing a child’s own individual development, so it’s worth resisting the urge to redirect or stop it.

Navigating the system

Many parents find that the information available to them is heavily weighted toward a medical or deficit-based view of autism. Shifting that focus toward simply enjoying the experience of raising your child, while still navigating diagnosis and services as they come, can make a real difference to family life.

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